Contributors ix
Eugene McCloskey
Reader in Adult Bone Disease
Academic Unit of Bone Metabolism and WHO Collaborating Centre for Metabolic Bone Diseases
University of Sheffield
Sheffield, UK
Caroline Mitchell
Senior Clinical Lecturer General Practitioner
Academic Unit of Primary Medical Care
University of Sheffield
Sheffield, UK
Jacqueline Oliver
Research Associate
Arthritis Research Campaign
Chesterfield, UK
Nicola Peel
Northern General Hospital
Sheffield, UK
Rosalind Ramsey-Goldman
Solovy Arthritis Research Society Research Professor of Medicine Northwestern University Feinberg School of Medicine
Chicago, IL, USA
Sarah Ryan
Nurse Consultant in Rheumatology
Haywood Hospital
Stoke-on-Trent Community Health Service
Stoke-on-Trent, UK
David G I Scott
Consultant Rheumatologist
Norfolk and Norwich University Hospital NHS Trust
Honorary Professor
University of East Anglia
Norwich, UK
Michael Shipley
University College London Hospitals
The Middlesex Hospital
London, UK
Alan Silman
Medical Director
Arthritis Research Campaign
Chesterfield, UK
Taunton R Southwood
Professor of Paediatric Rheumatology
University of Birmingham, Birmingham
Birmingham Children’s Hospital
NHS Foundation Trust
Birmingham, UK
Cathy Speed
Honorary Consultant
Rheumatology and Sports Medicine
Cambridge University Hospital
Cambridge, UK
Ilona S Szer
Director, Pediatric Rheumatology
Rady Children’s Hospital and Health Center
San Diego, CA, USA
Mohammed Tikly
Professor of Rheumatology
Chris Hani Baragwanath Hospital
University of the Witwatersrand
Johannesburg, South Africa
Lori Tucker
Division of Pediatric Rheumatology
British Columbia’s Children’s Hospital
Vancouver, BC, Canada
Martin Underwood
Professor of Primary Care Research
Warwick Medical School
University of Warwick
Coventry, UK
Louise Warburton
Shawbirch Medical Practice
Shawbirch
Telford, UK
Richard A Watts
Consultant Rheumatologist
Clinical Senior Lecturer University of East Anglia, Norwich
Ipswich Hospital NHS Trust
Ipswich, UK
Mark Wilkinson
Clinical Senior Lecturer, Orthopaedics
Academic Unit of Bone Metabolism
University of Sheffield
Northern General Hospital
Sheffield, UK
x Contributors
Anthony G Wilson |
James Woodburn |
Professor of Rheumatology |
Professor of Rehabilitation |
University of Sheffield |
Glasgow Caledonian University |
Sheffield, UK |
Glasgow, UK |
Elspeth Wise |
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General Practitioner |
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Belmont Surgery |
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Durham, UK |
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The fourth edition of the ABC of Rheumatology marks a change in Editor. I would like to thank my predecessor Mike Snaith for his sterling work in producing such excellent previous editions of this book which has led to its worldwide recognition and appeal. The fact that the book is now in its fourth edition is testimony to the great foundation that he laid.
I have kept the tradition as well as enriched the strengths of previous editions to ensure that this book continues to provide a good and up to date foundational knowledge of Rheumatology and Musculoskeletal Medicine for a wide spectrum of those interested in this field. This ranges from family doctors, medical students,
nurse specialists, allied health professionals to doctors in training and others besides.
I would like to thank all those who have contributed to this current edition including my colleagues, not only in Sheffield but also across the United Kingdom and indeed other parts of the world. I am particularly pleased to have so many authors from North America where this book is increasingly being used.
Finally, I wish to thank the publishers for their dedication and professionalism.
Ade Adebajo
xi
ACE |
angiotensin-converting enzyme |
ICP |
integrated-care pathway |
AHPS |
allied health professionals |
IL-1 |
interleukin-1 etc. |
ANA |
antinuclear antibody |
IPJ |
interphalangeal joint |
ANCA |
anti-neutrophil cytoplasmic antibodies |
JDM |
juvenile dermatomyositis |
APLA |
antiphospholipid antibody |
JIA |
juvenile idiopathic arthritis |
APLS |
antiphospholipid antibody syndrome |
JCA |
juvenile chronic arthritis |
arc |
The Arthritis Research Campaign |
JRA |
juvenile rheumatoid arthritis |
ARMA |
Arthritis and Muskuloskeletal Alliance |
KD |
Kawasaki disease |
AS |
ankylosing spondylitis |
LBP |
low back pain |
BMD |
bone mineral density |
MCPJ |
metacarpophalangeal joint |
BMI |
body mass index |
MCTD |
mixed connective tissue disease |
BSR |
British Society for Rheumatology |
MDT |
multidisciplinary team |
CATS |
clinical assessment and treatment services |
MMP-3 |
matrix metalloproteinase-3 |
CHB |
congenital heart block |
MPO |
myloperoxidase |
CMCJ |
carpometacarpal joint |
MRI |
magnetic resonance imaging |
CRP |
C-reactive protein |
NICE |
National Institute for Health and Clinical Excellence |
CTGF |
connective tissue growth factor |
NOGG |
National Osteoporosis Guideline Group |
CWP |
chronic widespread pain |
NSAID |
non-steroidal anti-inflammatory drug |
DIPJ |
distal interphalangeal joint |
OA |
osteoarthritis |
DMARDs |
disease-modifying antirheumatic drugs |
PAH |
pulmonary arterial hypertension |
DMS |
dermatomyositis |
PIPJ |
proximal interphalangeal joint |
DRUJ |
distal radio-ulnar joint |
PMR |
polymyalgia rheumatica |
DXA |
dual X-ray absorptiometry |
PsA |
psoriatic arthritis |
ELISA |
enzyme-linked immunosorbent assay |
RA |
rheumatoid arthritis |
ERA |
enthesitis-related arthritis |
ReA |
reactive arthritis |
ESP |
extended-scope physiotherapist |
RVSP |
right ventricular systolic pressure |
ESR |
erythrocyte sedimentation rate |
SAA |
serum amyloid A |
ESWT |
extracorporeal shock wave therapy |
SCLE |
subacute cutaneous lupus erythematosus |
GCA |
giant cell arteritis |
SLE |
systemic lupus erythematosus |
GI |
gastrointestinal |
SpA |
spondyloarthritides |
GP |
general practitioner |
SRC |
scleroderma renal crisis |
GPsSI |
GP with special interest |
SSc |
systemic sclerosis |
GU |
genito-urinary |
ST |
spinal stenosis |
HRCT |
high-resolution computed tomography |
TGF |
transforming growth factor |
HSP |
Henoch–Schönlein purpura |
TNF |
tumour necrosis factor |
IBD |
inflammatory bowel disease |
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xii
CHAPTER 1
Community Rheumatology: Delivering
Care Across Boundaries
Elaine M Hay1, Jackie Hill2 and Ade Adebajo3
1Staffordshire Rheumatology Centre, Stoke-on-Trent, UK
2University of Leeds, Leeds, UK
3University of Sheffield, Sheffield, UK
OVERVIEW
•The importance of a multidisciplinary care pathway in the management of musculoskeletal patients is now well recognized globally.
•The need to provide a whole-community approach to the management of these patients is also being increasingly recognized globally.
•The shared-care monitoring of rheumatology patients on disease-modifying drugs between primary and secondary care is an example of a successful model using this approach.
•A community-wide approach encompassing the involvement and education of both patient and primary care physician will lead to earlier diagnosis, speedier and more appropriate secondary care referrals, quicker treatment and ultimately improved clinical outcomes.
•A community-wide approach will ensure that psychosocial factors are not overlooked and that “red flags” for regional pain syndromes are not missed.
•This approach will also ensure that evidence-based primary care treatments for musculoskeletal problems are developed and implemented.
The ever-increasing demand upon the acute hospitals to deliver emergency medicine, together with technological (but timeconsuming and expensive) advances means that in the UK and elsewhere follow-up of many chronic conditions has been squeezed out of the acute setting and, by default, delegated to primary care. Unfortunately this shift in activity has not always been mirrored by an appropriate shift in resources and skills. This chapter discusses new ways of working to try to ensure that patients with musculoskeletal conditions receive timely, appropriate treatments within the limitations imposed by restricted resources.
Shared care—how to make it work
With hospital services running at full (or over) capacity, one way
forwards is to develop models of shared care appropriate to local need, responsive to local demands and in the patients’ best interests. Simply transferring the workload from rheumatologists to general practitioners (GPs) will not work—primary care is also bursting at the seams. One way of transferring rheumatological expertise to the community, without increasing the burden on the primary care team, is to develop the roles of health professionals such as nurses, physiotherapists and occupational therapists. Such practitioners, working in an extended role, operate at a high level of clinical practice and cross traditional professional boundaries. Their expertise includes assessment (of the disease and psychosocial factors), follow-up and management of patients with musculoskeletal conditions and inflammatory arthritis. Their roles and responsibilities have recently been defined (Carr, 2001).
What is the role of the specialist nurse?
Specialist nurses are highly skilled and provide holistic care for patients and their significant others by addressing their physical, psychological and social needs. They can play a pivotal role in the management of people with musculoskeletal conditions, acting as effective communicators between the patient, their GP and hospital consultant. Like GPs, they tend to stay in post for many years and become a “constant presence” in the patient’s illness journey, thus ensuring the continuity of care that those with a chronic disease value so highly. The role of the specialist nurse is essentially to provide care management, education and support for patients and their families, and to act as an educator and resource for other health professionals. The role includes those activities shown in Box 1.1. Some nurse specialists also undertake advanced practices such as intra-articular injections (Meadows and Sheehan, 2005). This can be particularly useful to GPs, who may be inexperienced in this procedure. After specialist training these nurses can also prescribe drug therapy (Carr, 2001). Of all these activities, patient education remains one of the priorities of the specialist nurse (Department of Health, 2006).
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